By Inge Scharrer, Wolfgang Schramm
This ebook includes the contribution to the thirty fifth Hemophilia Symposium, Hamburg 2004. the most issues are epidemiology, danger of infections and inhibitors in hemophilia, continual hemophilic synovitis and long term result of orthopedic remedy, laboratory diagnostics and pediatric hemostaseology. the quantity is rounded off via a number of loose papers and posters on hemophilia and hemorrhagic issues and inhibitors in hemophilia.
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Additional resources for 35th Hemophilia Symposium Hamburg 2004: Epidemiology;Risk of Infections and Inhibitors in Hemophilia; Chronic lic Synovitis and Long-term Results of Orthopedic ... Hemostaseology;Free Lectures
Krebs total number of deaths per year a) % of total number of deaths per year b) other diseases bleeding HIV liver disease cancer no comment accident, suicide, drugs, murder other diseases bleeding HIV liver disease cancer no comment accident, suicide, drugs, murder Fig. 5. Chart of deceased patients per year, separated for causes of death Total number of deaths per year (cummulated) HIV Infection and Causes of Death in Patients with Hemophilia in Germany 11 other diseases bleeding HIV liver disease cancer no comment accident, suicide, drugs, murder Fig.
Locher Database transformation to online version of internet communication The software of the registry was transformed to be retrievable from an extranet system. At the same time the registration of the hemophiliac patients has been changed: the former register-domain with anonymous coded names (BGA code) was generally opened to full name personal data (former confidential safe-domain), provided the informed consent of the patients could be obtained. Only about 6% denied permission; these patients will remain in the registry with anonymous data.
Overall annual mortality in patients with bleeding disorders in the 2003/2004 survey adds up to 0,26% per year. 7 patients (31,8%) died of other diseases not distinguished in this survey. No indications for Creutzfeldt-Jakob disease in our patient collective has been reported since 1978. Once again mentionable is the low portion of only 2 reported deaths with no comment (13,6%), improving data quality clearly. Arranging data for greater periods of time one can see these changes obviously (see Fig.
35th Hemophilia Symposium Hamburg 2004: Epidemiology;Risk of Infections and Inhibitors in Hemophilia; Chronic lic Synovitis and Long-term Results of Orthopedic ... Hemostaseology;Free Lectures by Inge Scharrer, Wolfgang Schramm